When a baby first develops an infantile hemangioma, parents and caregivers may experience feelings of confusion, anxiousness, and guilt.
Below is a list of organizations dedicated to providing education and support to all those affected by infantile hemangiomas.
National Organization of Vascular Anomalies (NOVA)
P.O. Box 38216
Greensboro, NC 27438-8216
The National Organization of Vascular Anomalies is a patient support, advocacy, and educational agency for those affected by infantile hemangiomas, vascular malformations, rare benign tumors, and other related syndromes.
The Vascular Birthmarks Foundation (VBF)
P.O. Box 106
Latham, NY 12110-0106
Phone: (877) 823-4646
The Vascular Birthmarks Foundation is an international charitable organization that connects families affected by vascular birthmarks, tumors, or syndromes to the appropriate medical professionals. The foundation also provides informational resources, sponsors physician education, facilitates medical mission trips, and supports research and programs that promote acceptance for individuals with birthmarks.